Seven year old Ciarán was promised the treatment in the new year.
A seven year old boy from the midlands is among those being excluded from accessing a life-changing Cystic Fibrosis drug.
35 children in Ireland aged between six and 11 are unable to access Kaftrio due to a price dispute between US pharmaceutical company, Vertex and the HSE.
CF Ireland is urging the two bodies to return to the negotiation table in order to widen access to those who need the drug.
Stephanie Kilmurray says her son Ciarán is constantly at risk of infection without Kaftrio, and forced to live a very restricted life.
The Mullingar mum says they were promised the drug back January, so the new has been very hard to take:
Laois and Offaly Children Waiting Six And Half Hours For Physiotherapy
Offaly Tidy Towns Committee Launch Campaign Against Illegal Dumping
Midlands Waste Facility Reopens After Extended Closure
All-Female Running Group Launches In Offaly
Laois/Offaly Gardai Launch 2026 Youth Awards
Miriam O'Callaghan To Host Pieta House Fundraiser In Laois
Book Published On Laois Cancer Support Service
Midlands Recruitment Survey Shows Job Opportunities Rise
Tirlán's Business & Market Outlook 2026 Meeting Taking Place In Laois
Lost Dog In The Care Of Mullingar Garda Station
IFA Insists They Strongly Back Farmers On Beef Prices
Enoch Burke Released From Prison Amid Threats To Return To Westmeath School
Man Arrested On Suspicion Of Murder Following Offaly Arson Attack
Water Outages In Laois
Father Of Murdered Offaly Boy Asks For Sentence Over €32k Drug Seizure
Laois Food Business Shuts Down After FSAI Issues Closure Order
Midlands Schools Shine In National Third Level Progression Rankings
17th Century Glassmaking Headlines Offaly Learning Event
Chief Prison Inspector Points To Health Minister Over Mental Health Crisis
Agri Reporter Suggests Mercosur Threat Being Overplayed