They are planning on talking to elected representatives.
A campaign to highlight the under-resourced genetics services at Crumlin Hospital is underway.
The 'Get Rare Aware' campaign is being run by Rare Diseases Ireland, who cater to people across the country suffereing from a rare disease.
They are asking elected representaitves to take action in the hospital.
Founder of Rare Ireland, and Athlone's Laura Egan says where treatment is possible, early diagnosis is important:
Five-Year-Old Boy Has Died Following A Collision In The Midlands
It was the second fatal collision in the region this weekend.
Midlands Authors To Attend Events In Local Libraries Tomorrow
Laois, Offaly and Westmeath will host events respectively.
Mullingar Chamber Of Commerce Encourages Businesses Start - Ups
It plans to support young people staring new business ventures.
Residential Care Home Given Green Light In Laois
Permission was granted by Laois County Council subject to 12 conditions.
Calling All Farmers: DCU Asking Farming Families To Take Health And Welfare Survey
Dr. Siobhan O'Connor joins David Hollywood on Health & Fitness this week.
Offaly Woman Raises Almost €8k For Sightsavers Ireland
She solo cycled 6 - 8 hours daily over two weeks in 30 degree heat.
Court Gives AG Go Ahead To Pursue Enoch Burke Finds
The Westmeath man refused to obey a court order to stay away from Wilson’s Hospital School.
Sugar Beet Sector Has More To Offer According To Laois TD
Brian Stanley believes products can extracted from the plant.
'Children Are Entitled To Be Heard' - Westmeath Psychotherapist
It comes following a viral video of a child misbehaving during a wedding.
Valerie Duffy Selected For Roscommon County Council
She is the replacement for Athlone Councillor John Naughten who passed away suddenly last October.
Midlands MEP Critical Of Gender Inequality In Just Transition
Ciaran Mullooly spoke out on a trip to Poland.
Longford-Westmeath Sinn Fein TD Appointed As Party's Mental Health Spokesperson
Sorca Clarke was previously the party spokesperson on education.
New Bus Service Launches For Laois Commuters
The Pl1 and Pl2 routes launch on Sunday.
Power Outage Hits Laois
An outage has occurred in Borris in Ossory this morning.
Laois School Of 32 Head To All Ireland Robotics Final With World Champs On The Horizon
Rushall National School is in the national final of the VEX IQ Robotics competition.
Offaly TD Pushes For Enhanced FDI Supports
Offaly has been hit news of job losses in recent months.
Tributes Paid To Bishop Willie Walsh
He passed away late yesterday.
Salary Surveys Set Unrealistic Expectations - CEO FRS Network Group
Financial pressure must also be considered.
Garda Fitness Test Eased To Attract Recruits
Sit ups and push ups are now being removed.
Lighting Contractor For Offaly County Council Questioned
Locals have raised concerns over the lack of lighting in Offaly towns.
