The event is to mark her 40th birthday.
A major celebrity is set to run a marathon with a Laois woman living with EB.
Colin Farrell is taking on the feat with Abbeyleix's Emma Fogarty to mark her 40th birthday, and will compete in October's Irish Life Dublin Marathon.
Ms. Fogarty, who is Ireland's longest surviving person battling the skin condition, will join him in a wheelchair for the final stages of the race.
Mr. Farrell says it'll be an amazing occasion:
He says Ms. Fogarty is the strongest person he's ever met, and a true warrior:
“For years now, I’ve been fortunate enough to bear witness not only to her courage and her vulnerability, but her humour, her stubbornness and her great, great heart too.
The fact that I’m getting to run the Irish Life Dublin Marathon with my friend to celebrate her 40th birthday is something I’m so excited about. She’s already won the whole day!”
Ms. Fogarty says the doctors said it would be better for her not to make it, because her life would be so hard:
“No one expected me to survive for this long – because people with my type of EB almost never do – but I’ve always been encouraged to be a fighter.
Reaching 40 shouldn’t be a miracle, but right now, it is.
I’m asking everyone to donate to Debra, which has been like a family to me, so everyone with EB in Ireland can live the longest, fullest life possible.”
Anyone who wishes to sign up for Emma's Run to 40, can do so here.
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