Around 120 people in Ireland live with PWS.
The world's first dedicated respite centre for people living with a rare condition is opening this weekend in Laois.
Prader Willi Syndrome results in low muscle tone and delayed milestones in babies, as well as causing a person to constantly feel hunger while being more susceptible to weight gain.
PWS affects around 120 people in Ireland, with approximately five babies born across the country with the condition every year.
Ait Shona, run by Resilience Healthcare, will have its official opening this Saturday, with the Minister of Disability, Anne Rabbitte officiating in Stradbally.
Emma Tierney, who's 12 year old son Henry lives with PWS, says he is very excited for his first stay at the new facility: